DKBmed conducted a focus group comprising several Black individuals with MS, with two primary goals in mind: to hear about the participants' experiences in their health care process with MS and to elicit their perspectives on resources and tools that we could provide to help other Black individuals with MS navigate their health care journey. Below are some of the resources that the focus group participants and our expert MS faculty recommended specifically for Black people with MS, particularly those who are newly diagnosed.

Focus Group Videos

Disparities

Improving Care

Inequities

Websites

National African Americans with MS Registry (NAAMSR) - https://www.naamsr.org/
NMSS - Black MS Experience Program Series - https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience
We Are ILL - Patient Advocacy Organization - https://www.weareillmatic.com
Understanding Clinical Trials - https://www.hopkinsmedicine.org/research/understanding-clinical-trials/poc-and-clinical-trials
Health Insurance Guide - https://www.healthcare.gov/quick-guide/

Social Media

Dr. Folake Taylor

Marti Hines - MS Advocate

Women of Color with Multiple Sclerosis Facebook Group

YouTube Channel


Brain Chat with the Nerdy Neurologist Dr. Mitzi Joi Williams